Back to the Windy City

I’m heading back to CTCA Zion.

I finally received some “good” news that my tumor does not have any genetic mutations, which enables me to get EGFR protein treatment. For whatever reason the Beaumont pathology lab here in Michigan never tested my initial tumor for the KRAS mutation, but the doctors at CTCA Zion requested a sample to test. If the test comes back negative for mutations, this protein treatment can benefit metastasized colon cancer (and other cancers).

So what does that mean?

Epidermal growth factor receptor (EGFR) is a protein that often appears in high amounts on the surface of cancer cells and helps them grow. Drugs that target EGFR can be used to treat some advanced colon or rectal cancers. The two drugs used are Cetuximab (Erbitux) and Panitumumab (Vectibix). Both of these drugs are given by IV infusion, either once a week or every other week. About 4 out of 10 colorectal cancers have mutations (defects) in the KRAS or NRAS gene, which make these drugs ineffective. Doctors now commonly test the tumor for these gene changes before treatment, and only use these drugs in people who do not have these mutations. Doctors may also test for a mutation in the BRAF gene, which would also indicate that these drugs would not work. (Source: http://www.cancer.org/cancer/colonandrectumcancer/detailedguide/colorectal-cancer-treating-targeted-therapy)

There are some side-effects, but mostly limited to a rash during infusion. These drugs stop or slow production of a protein the body uses to build the tumors. Now, these drugs are typically used with chemo, but since my previous bad experience with chemo, I asked for it without chemo. The doctor agreed, but I know he’d rather me do it with chemo.

This is a drug that falls into the “conventional treatment” category, so I am hoping to be able to receive both Hyperthermia Treatment and IV Vitamin C while I’m there. I asked if these would be available for me to try, but they couldn’t tell me if the doctor would allow it or not. I have to first talk with him and see what he will let me do.

I really hope he does. I’m in a tough situation. I did chemo originally like most people do. I had hopes it would help, and it did shrink the tumors I had on my liver. However, it also made me very sick and I honestly didn’t care to live anymore while getting it. I didn’t want to eat. I didn’t want to get out of bed. I didn’t care that I had a family that depended on me. I didn’t want to play with my kids. I just wanted to lay down and sleep. That’s no way to live.

If the doctor I see next week had that experience, I think he’d stop chemo too. I think most people would. It worries me that those feelings of hopelessness and apathy would return if I ever do chemo again and that’s not what I want for my life. I really hope he can understand where I am coming from and that he agrees to let me benefit from the alternative therapies they offer there.

Tuesday morning I have a injection training class at my Michigan Naturopath Oncologist’s office for a new therapy I am starting. I will be doing mistletoe extract injections, which show good results in european countries for people with cancer. There are limited studies on it because not many trials have been done on it here in the states, but it has limited side effects and boosts the immune system while fighting cancer. (Source: http://www.cancer.gov/about-cancer/treatment/cam/patient/mistletoe-pdq)

I’ve also started the GcMAF protein cream. This drug is another under studied protein therapy, but it comes in cream, yogurt and injectable forms. I’m only doing the cream currently, but if I see positive results I’ll either continue it or graduate up to the yogurt or injection. Why am I doing it? Here’s the science…

In a healthy person your GcMAF acts as a “director” of your immune system. But viruses and malignant cells like cancer send out an enzyme called Nagalase that prevents production of your GcMAF: that neutralises your immune system. So diseases become chronic, and cancer cells grow unchecked. The GcMAF Conference 2013 showed GcMAF is a far more powerful molecule than we thought, both in terms of the science, and doctors’ results. In stage 4 cancer, some doctors who choose the right complimentary therapies, such as those listed on our “Treatment Strategies,” are saving every patient. We’ve had complete successes with many common cancers including prostate lung and breast, but a little with leukemia and melanoma too. The immune system can eradicate chronic inflammation, bacterial and viral infections, and our GcMAF has been successful here, and with Autism, Chronic Herpes, Chronic Acne, CFS, Lyme disease, Fibromyalgia, LMBBS, Osteoporosis, and various types of Immune dysfunction including allergies. Research shows GcMAF can reverse HIV, Parkinson’s, and prevent deterioration in MS and ALS, and in its role of immune system regulator, can reverse diseases that attack the immune system like Lupus and Arthritis. Severe cirrhosis of the liver takes 15 months or more. Its usually effective with severe depression. (Source: http://www.firstimmune.fr/how-gcmaf-works/)

Again, this is mainly a European therapy, but there are success stories of people on it. It is not researched too much here in the States, but with Stage 4 cancer, what do I have to lose?

That’s about all I have to say to catch everyone up to speed on my cancer journey. I leave Tuesday for Chicago and should be back on Thursday unless my doctor schedules the Hyperthermia and IV Vitamin C. I’ll post an update how everything went next weekend most likely.

Thanks for the continued support, thoughts and prayers. We constantly feel very loved. I feel well and have hope that I’ll continue to get better, and that’s because of all the people who have helped us this past year. I love and appreciate all of you.

I am greater than cancer.

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